One step forward then and it feels like three back….

Avery with his stitches out! 8.8.11

 

Today they are going to be doing some x-rays of Avery’s stomach. He has been having residuals and they have come to a stand still as far as increasing his feeding. I personally think they need to give the little guy some time to catch up. They are going to have the “tummy” doctor come in today and decide if he needs a feeding tube inserted right into his stomach. He has been showing signs of sucking but to them not good enough progress but yet he is progressing each day.  I feel like the doctors want him out ASAP and aren’t giving him enough time to start sucking so the answer would be surgery of course.  Jenn is having some what of a hard time with all this and is just not happy seeing her baby suffer. I mean, who really would be?

Avery has also been throwing these tantrums…. His heart rate has reaches over 215. (the little monitors start sounding off and blinking red…pretty scary) They say he is ultra sensitive to light and sound because certain parts of his brain are missing so it heightens his senses and as most of you know Genesis is the loudest rambunctious kid you’ve met so we’re not sure how this will play out when he finally does come home, which will be another month after his feeding tube procedure. So visiting Avery while I’m at work has been very tough on my sister. And Genesis having a new baby brother with Special needs, AKA needs ALL of mommy’s attention, has been very emotionally hard for her. I believe God wants to finish the work that he started in Avery and I feel like it’s easy to say “he lived. that’s awesome. amen.” but its not over! Avery needs the healing power of Jesus and he needs it soon! He doesn’t deserve to suffer and Lord God, Creator of all things, wants him made whole!